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  • 1.
    Svensson, Birgitta
    et al.
    Skane Univ Hosp, Pediat Heart Ctr, Dept Cardiol, Lund, Sweden.; Lund Univ, Dept Clin Sci Lund, Pediat, Lund, Sweden..
    Liuba, Petru
    Skane Univ Hosp, Pediat Heart Ctr, Dept Cardiol, Lund, Sweden.;Lund Univ, Dept Clin Sci Lund, Pediat, Lund, Sweden..
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Berghammer, Malin
    Queen Silvia Childrens Hosp, Dept Paediat, Gothenburg, Sweden.;Univ West, Dept Hlth Sci, Trollhättan, Sweden..
    "I Dread the Heart Surgery but it Keeps My Child Alive"-Experiences of Parents of Children with Right Ventricular Outflow Tract Anomalies during the Assessment for Cardiac Reoperation2023Ingår i: Congenital Heart Disease, ISSN 1747-079X, E-ISSN 1747-0803, Vol. 18, nr 3, s. 349-359Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Parents of children with complex right ventricular outflow tract ( RVOT) anomalies are confronted with their child's need for heart surgery early in life and repeated reoperations later on. Preoperative assessment needs to be performed whenever an indication for reoperation is suspected. The aim was to illuminate the experiences of parents of children diagnosed with RVOT anomalies, in particular, how they experience their child's heart disease and everyday life during the assessment and after the decision on whether to perform a reoperation. Method: Individual interviews (n = 27) were conducted with nine parents on three occasions between 2014 and 2016 and analyzed using reflexive thematic analysis. Results: The analysis resulted in the following five main coexisting themes: The heart surgery keeps my child alive illuminates parents' experiences during and after the assessment and emphasizes that heart surgery, although dreaded, is central for their child's survival; Everyday struggles illuminates the different struggles parents had to face to ensure that their child would be in the best possible condition; the remaining three themes, Unconditional love, Trust in life, and Togetherness, illuminate the ways in which the parents gained inner strength and confidence in their everyday lives. Conclusion: Although the parents were grateful for the assessment and had learned to navigate among the fears it aroused, they experienced several distressing situations during the assessment process that should be addressed. By inviting both the parents and their child to participate in the child's care, individualized support can take into account the needs of both parents and child.

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  • 2.
    Svensson, Birgitta
    et al.
    Lund University.
    Liuba, Petru
    Lund University.
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Berghammer, Malin
    The Queen Silvia Children’s Hospital, Gothenburg; University West, Trollhättan.
    "The only thing I wonder is when I will have surgery again": everyday life for children with right ventricle outflow tract anomalies during assessment for heart surgery2023Ingår i: Cardiology in the Young, ISSN 1047-9511, E-ISSN 1467-1107, Vol. 33, nr 3, s. 396-401Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Many children with complex right ventricle outflow tract anomalies such as Tetralogy of Fallot, common arterial trunk, and pulmonary atresia with ventricular septal defect require repeated heart surgeries early in life, but also later throughout their lifetime, thereby emphasising the importance of careful life-long follow-up. The need for repeated heart surgeries during childhood is recognised as a heavy burden on the child. Optimising the time point for re-intervention is important, since delaying re-intervention for these children can lead to complications such as ventricular arrhythmias, heart failure, and death. To this purpose, thorough pre-operative assessment (henceforth named as assessment) including clinical examination, echocardiography, MRI, and exercise test need to be performed whenever the indication for reoperation is suspected. It is likely to believe that children who are going through this kind of assessment that may lead to heart surgery need extra support. According to previous research, children with complex heart disease fear for the possibility of surgery and the thought of future repeated heart surgery is associated with anxiety. This might have an impact on children's everyday life and in research nowadays involving children with CHD, the focus has changed from survival to how these children experience their everyday life. Earlier studies have shown that they experience physical activities limitation and feelings of isolation, but no study has yet studied how children with right ventricle outflow tract anomalies experience their everyday life. To be able to provide support, studies are needed to explore how these children experience the period from assessment to decision, as well as the months thereafter. Therefore, the aim of this study was to explore how children diagnosed with complex right ventricle outflow tract anomalies experience their heart disease and their everyday life during the assessment and after the decision on whether to perform a new cardiac surgery.

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  • 3.
    Samuelsson, Maria
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV). Skane Univ Hosp, Dept Pediat, Malmö, Sweden..
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bengtsson, Mariette
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Lydrup, Marie-Louise
    Skane Univ Hosp, Dept Surg & Gastroenterol, Malmö, Sweden..
    Jakobsson, Jenny
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV). Skane Univ Hosp, Dept Surg & Gastroenterol, Malmö, Sweden..
    Translation, cultural adaptation, and psychometric testing of the supportive care needs survey for partners and caregivers for swedish family members of persons diagnosed with colorectal cancer2023Ingår i: Journal of patient-reported outcomes, E-ISSN 2509-8020, Vol. 7, nr 1, artikel-id 100Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Colorectal cancer is the third most common cancer diagnosis globally and is increasing in both incidence and prevalence. Despite evidence showing that family members of persons diagnosed with cancer have supportive care needs, no validated questionnaire measuring the needs of family members of persons diagnosed with CRC exists in Swedish. Thus, the objective of the present study was to translate, culturally adapt, and evaluate the psychometric properties the Supportive Care Needs Survey - Partners and Caregivers 45.

    Methods: The translation and cultural adaptation followed a systematic yet iterative process. Firstly, the questionnaire was translated using a forward-backward approach. Secondly, face and content validity and comprehensibility were evaluated by two expert panels of colorectal cancer specialist nurses and family members, respectively. Lastly, the psychometric properties, validity, and reliability of the translated questionnaire were evaluated among 45 Swedish family members of persons diagnosed with colorectal cancer.

    Results: The face, content, and construct validity of the translated questionnaire were evaluated as satisfying. Moreover, psychometric evaluations showed high data quality and satisfactory internal consistency. However, the results also revealed unsolved issues regarding relevance, targeting, and internal consistency, as well as a probable scaling failure.

    Conclusion: The translated and adapted questionnaire can be used to identify family members unmet needs of support throughout the colorectal cancer trajectory. The questionnaire showed promising validity and reliability in the target population. However, it needs to be further evaluated in a larger sample, preferably involving factor analysis and stability over time.

    Plain language summary: Colorectal cancer is the third most common cancer diagnose globally. At times of cancer, also the health and wellbeing of the surrounding family members is negatively affected. As a result, family members of persons diagnosed with cancer report that they too need support. Still, no validated questionnaire that enable measurement of family members needs of support throughout the colorectal cancer trajectory existed in Swedish. Thus, the present study undertook the process of translation of a questionnaire from English to Swedish. Thereto, evaluated it among Swedish family members of persons diagnosed with colorectal cancer. The evaluation showed a successful translation and the translated questionnaire appeared reliable and useful for measuring the family members´ needs of support throughout the colorectal cancer trajectory. However, it requires further evaluation.

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  • 4.
    Westerdahl, Frida
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Carlson, Elisabeth
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Borglin, Gunilla
    Department of Health Sciences, The Faculty of Health, Science and Technology, Karlstad University, Sweden; Department of Bachelor’s in Nursing, Lovisenberg Diaconal University College, Oslo, Norway.
    Bachelor nursing students´ and their educators´ experiences of teaching strategies targeting critical thinking: A scoping review2022Ingår i: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 63, artikel-id 103409Artikel, forskningsöversikt (Refereegranskat)
    Abstract [en]

    AIM: The objective of this scoping review was to review the published literature on existing teaching strategies targeting bachelor nursing students' critical thinking and explore how these strategies are described by students and educators. The research questions were: (i) Which teaching strategies are described in the literature targeting critical thinking among nursing students? and (ii) How are these teaching strategies described and experienced by students and/or nurse educators?

    BACKGROUND: Critical thinking is integrated in the many clinical assignments and responsibilities with which registered nurses are faced. Therefore, it is important that nurse educators implement teaching strategies supporting bachelor nursing students' development of critical thinking to prepare them for their professional responsibilities.

    DESIGN: Scoping review, Open Science Framework (OSF) registries DOI: 10.17605/OSF.IO/D89SB.

    METHODS: The scoping review followed the six steps of Arksey and O'Malley (2005). Systematic searches were conducted using the databases PubMed, CINAHL, ERIC, ERC and PsycINFO. Eligible studies were quality assessed and text excerpts answering the research questions were analysed by a thematic analysis.

    RESULTS: Our findings represent 19 published studies and can be understood according to two themes: the importance of the educational conditions and the impact of implemented teaching strategies. The first theme reflected not only the descriptions of important traits in the educational milieu facilitating the development of critical thinking but also the importance of how the content targeting such skills were delivered and organised. The second theme mirrored descriptions of how the students, through the teaching strategies, realized the need for collaboration to facilitate critical thinking. Further, it showed how the teaching strategies fostered professional growth and learning adaptation, by encouraging the students to question their knowledge and facilitating their development of clinical knowledge.

    CONCLUSIONS: The strategies used in the facilitation of critical thinking need to incorporate collaboration and student-centredness, creating a relaxed climate where the educators can assist through guidance and support. This calls for the implementation of teaching strategies whereby both educators and students are active in facilitating the learning environment.

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  • 5.
    Samuelsson, Maria
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Jakobsson, Jenny
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Lydrup, Marie-Louise
    Skåne University Hospital, Department of Surgery, Malmö, Sweden.
    Bengtsson, Mariette
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Cancer specialist nurses' experiences of supporting family members of persons diagnosed with colorectal cancer: A qualitative study2022Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 61, s. 102205-102205, artikel-id 102205Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: The purpose of the present study was to explore cancer specialist nurses' experiences of supporting family members of persons diagnosed with colorectal cancer.

    Method: The study was designed as a qualitative study. Data was collected using individual semi-structured telephone interviews with 21 cancer specialist nurses. The interviews were transcribed and analysed with reflexive thematic analysis.

    Results: The analysis generated one overarching theme, In the shadow of the person diagnosed with colorectal cancer, and four themes: striving for confidence, searching for ways to support, seeking individualization, and balancing between needs. Swedish colorectal cancer care is organized with the persons diagnosed with colorectal cancer as the centre of care and lacks both structure and allocated resources for supportive care for family members. Thus, support for family members has to be provided within the existing colorectal cancer care. The support provided focuses mainly on strengthening the family members' ability in the caregiving role and is offered primarily at the time of diagnosis.

    Conclusion: There is an apparent need for developing supportive care plans for family members, involving repeated assessments of multidimensional needs, a tailored support, and follow-ups. Accordingly, a re-evaluation of the cancer specialist nurse's role is needed so that key nursing responsibilities are not ranked second to administrative tasks.

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  • 6.
    Samuelsson, Maria
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV). Department of Pediatrics, Skåne University Hospital.
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Jakobsson, Jenny
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bengtsson, Mariette
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Models of support to family members during the trajectory of cancer: A scoping review2021Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 30, nr 21-22, s. 3072-3098Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aims and objectives To map the existing literature on support models provided to family members during the cancer trajectory. Background Cancer diagnosis, treatment and survivorship have a profound influence on the surrounding family members. This scoping review is part of the development of a support model for family members of persons diagnosed with colorectal cancer. Design The method was guided by the Arksey and O'Malley framework, described in the Joanna Briggs Institute guidelines, and the reporting is compliant with PRISMA-ScR Checklist. Searches were conducted in PubMed, CINAHL and PsycINFO from November 2019-February 2020 with no limitation in publication year or study design. Complementing searches were conducted in reference lists and for grey literature, followed by an additional search in September 2020. Inclusion criteria were primary research about support provided by health care, to family members, during cancer, of an adult person, in Swedish or English, of moderate or high methodological quality. Quality was assessed using the Joanna Briggs Institute critical appraisal tools. Data were extracted using a charting form. Result A total of 32 studies were included in the review describing 39 support models. Conclusion The mapping of the existing literature resulted in the identification of three themes of support models: psychoeducation, caregiver training and psychological support. In addition, that future research should target a specific diagnosis and trajectory phase as well as include family members and intervention providers in model development. Relevance for clinical practice Knowledge from the literature on both the needs of the family members and existing support models should be incorporated with the prerequisites of clinical practice. Clinical practice should also be complemented with structured assessments of family members' needs conducted regularly.

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  • 7.
    Wennick, Anne
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Schoug, Dorota
    Department of Pediatrics, Skåne University Hospital, Lund, Sweden.
    Ekwall, Anna
    Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
    Axelsson, Malin
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Translation, adaptation and testing of an emergency care satisfaction scale in Swedish pediatric emergency departments2021Ingår i: BMC Pediatrics, ISSN 1471-2431, E-ISSN 1471-2431, Vol. 21, nr 1, artikel-id 486Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Pediatric healthcare today shows a rising demand for research focusing on children's perspectives on and consumer satisfaction with the nursing care they receive. Therefore, the purpose of this study was to translate and adapt the Consumer Emergency Care Satisfaction Scale (CECSS), a paper-based, self-administered 19-item questionnaire originally developed in the United States and targeted towards adults, and then test the new version in Swedish pediatric emergency departments.

    METHODS: The study was designed with a two-phase approach. Firstly, a forward-backward translation of the CECSS, involving expert consensus, was performed, and then the questionnaire was adapted for children aged 10-18 and assessed for face and content validity. Secondly, the translated and adapted questionnaire was tested with a clinical sample for construct validity, internal consistency, and reliability. This last aspect was assessed using a structured telephone interview 7-10 days after the participant visited a pediatric emergency department. All children participating in this study gave their assent (< 15 years) or consent (≥ 15 years), and their guardian's written informed consent was also obtained.

    RESULTS: The paper-based, self-administered 19-item Swedish version of the CECSS was tested on a clinical sample consisting of 203 nonurgent children (boys: n = 109, 53.7 % and girls: n = 94, 46.3 %) between 10 and 18 years (mean age 13.8, SD 2.29). The factor analysis revealed three factors that explain 63.1 % of the total variation in the 15 items. The Cronbach's alphas for the three dimensions (caring, teaching, and clinical competence) varied between 0.79 and 0.88. The intraclass correlation coefficient (ICC) for the entire Swedish version of the CECSS was 0.58, and the ICCs for the three dimensions varied between 0.56 and 0.71.

    CONCLUSIONS: The results show that the developed Swedish Pediatric Consumer Emergency Care Satisfaction Scale (p-CECSS-S) is a valid, stable and easy-to-use-questionnaire that can be used to assess children's satisfaction with nursing care.

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  • 8.
    Samuelsson, Maria
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    An exploratory study of the everyday life of Swedish children on home parenteral nutrition and their families.2020Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 52, s. e84-e89, artikel-id S0882-5963(19)30586-XArtikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Improved survival rates of preterm infants and critically ill children has resulted in an increasing number of children growing up on HPN. However, how the child and the child's family experience HPN is sparsely studied.

    PURPOSE: Thus, this study aims to elucidate the everyday life experiences of children with intestinal failure on HPN from the perspective of the child and the child's family.

    DESIGN AND METHODS: We used a qualitative inductive study that included semi-structured interviews from 13 family members in six families, and we analyzed them using content analysis.

    RESULTS: The family members' experiences had an overall theme, having to take on a full-time (nursing) responsibility, and fell into three categories: family restrictions, family adjustments, and family uncertainty.

    CONCLUSION: Families on HPN had to shoulder an in-home round-the-clock (nursing) responsibility that came with a daily logistical challenge. The complexity of HPN complicates the possibility of external support, so the families choose to keep the burden within the family; consequently single-parent households have limited possibilities for relief and recovery.

    PRACTICE IMPLICATIONS: To minimize the intrusion of the treatment in family's everyday life and, thereby, support the families, health care professionals might find it beneficial to obtain an inventory of the everyday life needs of each specific family when first introducing HPN. Further, by encouraging close kin to participate in the HPN education these families may be unburdened some more. In addition, it is essential that professionals follow the families protocol for management and not the other way around.

  • 9.
    Samuelsson, Maria
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Jakobsson, Jenny
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bengtsson, Mariette
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Models of support to family members during the trajectory of cancer: a scoping review protocol.2020Ingår i: BMJ Open, E-ISSN 2044-6055, Vol. 10, nr 9, artikel-id e037633Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    INTRODUCTION: A cancer diagnose, for example, colorectal cancer, not only affects the cancer-person stricken, but also the surrounding family. Thus, this scoping review intends to identify appropriate models of support that will guide the development of a model of support to family members during the trajectory of colorectal cancer.

    METHODS AND ANALYSIS: , and described by the Joanna Briggs Institute. All the stages will be conducted iteratively and reflexively. First, a search strategy will be developed with a librarian and applied in the following peer-reviewed databases: PubMed, Cumulative Index to Nursing and Allied Health Literature and PsycINFO. Additional searches will be performed in Google Scholar and SwePub for identification of grey literature and hand searched in the reference lists. Searches will be conducted from December 2019 to February 2020. A draft of the preliminary search strategy was performed in PubMed in November 2019. Subsequently, three members of the research team will independently screen all abstracts for relevance, as well as the full-text articles. Studies meeting the inclusion criteria will be critically evaluated using the Joanna Brigg Institute Critical Appraisal Tools. A descriptive summary of study characteristics and of the scoping review process will be presented, including a visual flow diagram. Lastly, a thematic analysis as presented by Braun and Clarke will be conducted. To enhance validity, contact nurses of persons with colorectal cancer will be provided an overview of the preliminary results.

    ETHICS AND DISSEMINATION: Being a secondary analysis, ethical approval is not needed for this study. The findings of the analysis will be used to inform the design of a future study aiming to develop a model of support and an upcoming scoping review, which will be published in a scientific journal and presented at relevant conferences.

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  • 10.
    Westerdahl, Frida
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Carlson, Elisabeth
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Borglin, Gunilla
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Teaching strategies and outcome assessments targeting critical thinking in bachelor nursing students: a scoping review protocol.2020Ingår i: BMJ Open, E-ISSN 2044-6055, Vol. 10, nr 1, artikel-id e033214Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    INTRODUCTION: Applying critical thinking is essential for nursing students both in an academic and clinical context. Particularly, as critical thinking is a vital part of nurses' everyday problem-solving and decision-making processes. Therefore, regardless of the topic taught or the setting in which it is taught, it requires teaching strategies especially targeting students' critical thinking skills and abilities. One challenge with the latter is the difficulties to assess and evaluate the impact of such teaching strategies on the students' critical thinking disposition. Hence, our objective will be to review published literature on; existing teaching strategies and outcomes assessments targeting nursing students' critical thinking skills and abilities.

    METHODS AND ANALYSIS: Our scoping review will be conducted in accordance with Arksey and O'Malley's framework for scoping studies. Search strategies will be developed in cooperation with an experienced librarian, and adjusted to each individual database for example, CINAHL, PubMed, PsycINFO, ERIC and ERC. A preliminary search in CINAHL was conducted on the 17th of July 2019. Peer-reviewed published studies conducted with a qualitative, quantitative or mixed method design and focussing our objectives, will be eligible for inclusion. Included studies will be quality assessed in accordance with their study design. Data will be charted using a standardised extraction form. The qualitative data will be presented through a thematic analyses, and the quantitative data by descriptive numerical analysis. Lastly, nurse educators and nursing students will be consulted for validation of the findings from the scoping review.

    ETHICS AND DISSEMINATION: Under the Swedish Ethical Review Act (2003:460) this study does not need ethical clearance by a Regional Ethical Review Authority as it not includes any primary empirical data on biological material or sensitive information. The findings will be used to inform the design of a future study aiming to develop an, and subsequently evaluate it, educational intervention targeting teaching strategies focussing on nursing students' critical thinking skills and abilities.

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  • 11.
    Holst-Hansson, Annette
    et al.
    Lund University, Sweden.
    Vejzovic, Vedrana
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    The Usefulness of Brief Family Health Conversations Offered to Families Following the Diagnosis of Breast Cancer.2020Ingår i: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 26, nr 4, artikel-id 1074840720966759Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Currently, there are few studies which examine targeted family-focused support when a family member is diagnosed with breast cancer. Thus, the aim of this study was to explore families' experiences of participating in a family nursing intervention identified as Brief Family Health Conversations (BFamHC) following the diagnosis of breast cancer. Semi-structured family interviews were conducted with nine families (including 29 family members) 2 weeks following the family-focused intervention of three sessions of BFamHC. Thematic analysis was used to analyze the data. Families reported the BFamHC as positive and as a unique kind of family health conversation, one that afforded them the opportunity to communicate and share their experiences as a family group. A family conversation, even one as time-limited as BFamHC, offered a sense of relational sharing and togetherness, thus preventing feelings of isolation and vulnerability. Therapeutic family-focused conversations, such as BFamHC, hold promise as a useful family nursing intervention following the diagnosis of breast cancer.

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  • 12.
    Carlson, Elisabeth
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Nygren, Frida
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Critical Friends: Health Professionals' Experiences of Collegial Feedback in a Clinical Setting2018Ingår i: Journal of Continuing Education in the Health Professions, ISSN 0894-1912, E-ISSN 1554-558X, Vol. 38, nr 3, s. 179-183Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Introduction: A critical friend is a trusted person who asks provocative questions, provides data to be examined through another lens, and offers critique of a person's work as part of collegial feedback. However, empirical evidence presenting the use of collegial feedback to develop health professionals’ competence in clinical settings seems to be scarce. The aim of this study was to explore health professionals’ experiences of observing each other as critical friends in a clinical setting, as part of a continuous professional development initiative. Methods: The study was designed as a qualitative inductive study. Reflective journals written by health professionals (n=57) were analysed using thematic networks. The health professionals represented registered nurses and registered nurses with different specialist education (for example in paediatrics, mental health, intensive care and anaesthesiology), biomedical scientists, occupational therapists, physiotherapists and dental hygienists. Results: Health professionals can successfully use collegial feedback and benefit from critical friendships in clinical settings as it offers ample opportunities for reflection before, during and after the observation. A key finding was that in order to incorporate changes to professional practice, each individual needs to not only to act as a critical friend, but also experience being observed by a critical friend. Discussion: Based on the results of this study, it seems worthwhile to implement and further develop opportunities for health professionals to act as critical friends. We suggest that future research explore not only how professional competence develops over time, but also how it impacts on health related outcomes for patients.

  • 13.
    Vejzovic, Vedrana
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bramhagen, Ann-Cathrine
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Swedish Children's Lived Experience of Ulcerative Colitis2018Ingår i: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 41, s. 333-340Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Inflammatory bowel disease (IBD) is increasing in children. When this lifelong illness is diagnosed in childhood, especially during adolescence, it may have a negative impact on children's quality of life. The aim of the present study was to illuminate the meaning of children's lived experience of ulcerative colitis. Seven children aged between 10 and 18 years were recruited from University Hospital South Sweden and interviewed about the phenomenon under scrutiny. Data were analyzed by means of a phenomenological hermeneutical method. The meaning of the children's lived experience of ulcerative colitis was summed up as a main theme. A daily struggle to adapt and be perceived as normal consisted of 4 subthemes: being healthy despite the symptoms, being healthy despite being afraid, being healthy despite a sense of being different, and being healthy despite needing support. The children strove to perceive themselves as healthy, and they needed to be perceived as healthy, especially when experiencing symptoms of inflammatory bowel disease. Children with inflammatory bowel disease confront various problems, such as ambitions and goals that are hard to achieve, due to reduced abilities as a result of the illness or an insufficiently adapted environment.

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  • 14.
    Holst-Hansson, Annette
    et al.
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bolmsjö, Ingrid
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö universitet, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    The narrow treatment road to survival: Everyday life perspectives of women with breast cancer from Iraq and the former Yugoslavia undergoing radiation therapy in Sweden2018Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 27, nr 2Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This study aimed at exploring how women from Iraq and the former Yugoslavia, diagnosed with breast cancer and living in Sweden, experience their everyday life during radiation therapy. A qualitative research design was used comprising interviews with ten women, five originating from Iraq and five from the former Yugoslavia. Striving to survive, the women experienced their everyday life during radiation therapy as extremely challenging. This experience can be placed into three categories: strategies for survival, keeping up appearances and staying in control. Because of these specific challenges, immigrant women may need additional information and guidance in conjunction with the diagnosis, which may enable them to identify possible sources of support from those closest to them. Also, greater attention should focus on acknowledging the woman behind the diagnosis, regardless of her origin, to develop an individualised support programme to help her cope with everyday life during radiation therapy.

  • 15.
    Wennick, Anne
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Jonsson, Ann-Kristin
    Bratt, Ola
    Stenzelius, Karin
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Everyday life after a radical prostatectomy: A qualitative study of men under 65 years of age2017Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 30, s. 107-112Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: The purpose of this study was to illuminate how men under 65 years of age experience their everyday Life one year or more after a radical prostatectomy for localised prostate cancer. Method: Interviews with 19 men aged under 65 were performed 12-18 months after their radical prostatectomy. The interviews were analysed using a thematic content analysis. Results: The analysis of the interviews revealed three categories of experiences: 'Paying a price for survival', 'Feeling sidestepped' and 'Living with death lurking around the corner'. The side effects of the prostatectomy, such as sexual dysfunction, resulted in a changed self-image with a loss of manliness and reduced self-esteem. The men felt sidestepped and that they did not receive enough support. Prostate cancer was experienced as an embarrassing disease and the men felt their fundamental needs could not be openly discussed. Having cancer was associated with death. Thoughts about death faded away during recovery after the operation, but grew stronger in certain situations and reminded the men about their cancer. Returning to work and to previous activities helped them cope with the thoughts about death. Conclusions: Our study suggests a need for improved rehabilitation after a radical prostatectomy, including more structured sexual rehabilitation, and involving the partner. Sharing the experiences of other men who have undergone prostate cancer surgery may also be beneficial. (C) 2017 Published by Elsevier Ltd.

  • 16.
    Holst-Hansson, Annette
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bolinsjo, Ingrid
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Hoping to reach a safe haven :Swedish families' lived experience when a family member is diagnosed with breast cancer2017Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 31, s. 52-58Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: When a woman is diagnosed with breast cancer, it affects all family members. Therefore, the aim of this study was to elucidate family members lived experience when a family member is diagnosed with breast cancer. Method: The study had a hermeneutic phenomenological design including individual conversational interviews conducted face-to-face with six women with breast cancer and their family members at two different points of time, in order to elucidate families' lived experience, both as individuals and as a unit, from each family member's perspective. Results: Living as a family in the presence of breast cancer is a challenging endeavour to regain an ordinary, safe life, hoping to reach a safe haven. The families felt that life as they knew it had disappeared and they were fumbling in the dark, trying to find support and guidance on their path to ordinary life. The family members were pursuing balance by attempting to keep the family together and maintaining a positive attitude while battling against fear and treatment-related side effects. Finally, the families were struggling with guilt and inadequacy, due to their difficulties in communicating the emotional distress that the illness brought upon them, at the same time as they felt abandoned by the healthcare professionals. Conclusions: Families experience an unmet need of information and support, which implies that healthcare professionals may want to acknowledge and include the family already at the time of diagnosis in order to help them endure and cope with the distressing experience and thus increase their wellbeing.

  • 17.
    Norling, Maja
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Stenzelius, Karin
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Ekman, Nina
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    High School Students' Experiences in School Toilets or Restrooms2016Ingår i: Journal of School Nursing, ISSN 1059-8405, E-ISSN 1546-8364, Vol. 32, nr 3, s. 164-171Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Previous research about school toilets is based on studies of children in elementary school. Thus, the aim of this study was to explore the experiences when using the school toilets reported by students aged 16-18 years. Qualitative interviews with 21 students were conducted and analyzed using content analysis. The data revealed that the toilets were considered insecure, dirty, and unpleasant. Additionally, students refrained from drinking during school hours and remained in constant movement or jumped up and down to withhold urine and stool. This was illustrated in the following categories: assessing the toilet environment, coping with the situation, and feeling exposed. Hence, there is an urgent need to improve the school toilet environment in order to respect the rights of all students to void or defecate when necessary, a process which will require involvement of students, teachers, and other school staff as well as the School Health Service.

  • 18.
    Wann-Hansson, Christine
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    How do patients with peripheral arterial disease communicate their knowledge about their illness and treatments?: A qualitative descriptive study2016Ingår i: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, nr 15, artikel-id 29Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Peripheral arterial disease is a chronic illness, and patients with peripheral arterial disease should receive advice about lifestyle changes and medical therapies to reduce further atherosclerotic complications. Previous research has indicated that patients with peripheral arterial disease lack information about their disease and secondary prevention measures. The aim was to elucidate how patients with peripheral arterial disease communicate their knowledge about their illness and treatments. Methods: During 2009, seven focus group interviews were conducted with twenty-one patients (50–81 years old) with peripheral arterial disease and were analysed using content analysis. Results: When respondents with PAD communicate their knowledge about the illness and its treatments they “Navigate through uncertainty, believes and facts about PAD, displaying an active or passive information-seeking behaviour”. After discharge, they felt a feeling of relief at first, which was later exchanged into uncertainty from their restricted knowledge about the illness and how to behave following revascularisation. For example, during the discussions about risk factors, smoking was noted as a major risk factor, that triggered feelings of guilt. Thus, the respondents needed to consult other sources of information to manage their everyday lives. Conclusions: Following endovascular treatment, the short amount of time spent with peripheral arterial disease patients requires innovative guidance in clinical practice to meet individuals’ needs regardless of whether the patient actively or passively understands and manages their peripheral arterial disease.

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  • 19.
    Vejzovic, Vedrana
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Agardh, Daniel
    Bramhagen, Ann-Cathrine
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Polyethylene Glycol- or Sodium Picosulphate-Based Laxatives Before Colonoscopy in Children2016Ingår i: Journal of Pediatric Gastroenterology and Nutrition - JPGN, ISSN 0277-2116, E-ISSN 1536-4801, Vol. 62, nr 3, s. 414-419Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Objectives: The purpose of this randomised study was to compare the quality of bowel cleansing using either polyethylene glycol (PEG) or sodium picosulphate (NaPico) (primary outcome) in relation to the tolerability and acceptance of these laxatives among children and their caregivers (secondary outcome). Methods: The study was a randomised controlled trial that was conducted as an investigator-blinded study within the Department of Paediatrics of Ska°ne University Hospital in Malmo¨ , Sweden. A total of 72 children (10–18 years of age) were randomly placed into 1 of 2 groups (PEG or NaPico). The Ottawa Bowel Preparation Quality Score was used to evaluate the quality of bowel cleansing. A total of 2 different questionnaires were used to evaluate both the acceptability and tolerability of the laxatives. Results: In total, 71 children completed the bowel cleansing. Of these 71 cleanses, 67 protocols were analysed according to the Ottawa Bowel Preparation Quality Score. No significant difference in bowel cleansing quality was detected between the 2 groups. Rates of acceptability and tolerability were significantly higher in the NaPico group than in the PEG group. Conclusions: In the present study, both laxatives were found to be satisfactory in terms of aiding the performance of an uncomplicated and successful colonoscopy. NaPico was, however, more tolerable to the children than PEG, and both, the children and their caregivers, were more accepting of NaPico than of PEG. Consequently, NaPico can be recommended as the option for bowel cleansing in children ages 10 years and older. Key Words: bowel cleansing, children, colonoscopy, randomised controlled trial

  • 20.
    Vejzovic, Vedrana
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bramhagen, Ann-Cathrine
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    A private affair: children’s experiences prior to colonoscopy2015Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 24, nr 7-8, s. 1038-1047Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aims and objectives. To illuminate children’s experiences prior to colonoscopy. Background. It is well known that children need to be well prepared before undergoing stressful medical procedures, and the goal of such preparations should focus on minimising their level of anxiety. The clinical investigation of children with suspected inflammatory bowel disease involves several steps, with colonoscopy being routinely used to investigate the colon and the lower part of the small intestine. To minimise children’s anxiety during various medical procedures, it is important that information about their experiences is obtained directly from the children themselves. Design. A qualitative study. Method. The study was designed as a qualitative interview study involving 17 children aged 10–17 years undergoing colonoscopy at a children’s university hospital in Sweden. Verbatim transcripts were analysed using content analysis. Results. The children’s experiences prior to colonoscopy were identified as belonging to an overall theme, a private affair, and to four categories: preparing yourself, mastering the situation, reluctantly participating and feeling emotional support. Conclusion. This study shows that children’s experiences prior to colonoscopy are a private affair and that the preparation needs to be individually adapted for the ‘preprocedural’ preparation to be comprehended. Relevance to clinical practice. The children’s experiences ascertained in this study can contribute to a greater understanding of children’s needs prior to a colonoscopy and may provide professional care staff with the basis for future nursing assessments.

  • 21.
    Vejzovic, Vedrana
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bramhagen, Ann-Cathrine
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Parents’ experiences when their child is undergoing an elective colonoscopy2015Ingår i: Journal for Specialist sin Pediatric Nursing, ISSN 1744-6155, Vol. 20, nr 2, s. 123-130Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose. The purpose was to illuminate parents’ experiences when their children are undergoing an elective colonoscopy performed using polyethylene glycol-based regimes for bowel preparation. Design and Methods. Individual interviews with 12 parents were performed and analysed using content analysis. Results. The parents’ experiences were structured into one theme: “Charged with conflicting emotions” with three categories: “Being forced to force,” “Losing one’s sense of being a parent” and “Standing without guidance.” Practice Implications. Understanding parents’ experiences can help healthcare staff guide parents in helping their children undergo a colonoscopy

  • 22.
    Holst-Hansson, Annette
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Idvall, Ewa
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bolmsjö, Ingrid
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    "One has to be strong" - immigrant women's experience of their daily life during radiotherapy due to breast cancer2014Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 18, nr Suppl 1, s. S51-S51Artikel i tidskrift (Övrigt vetenskapligt)
  • 23. Tveiten, Sidsel
    et al.
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Friis Steen, Hanna
    Sykepleie til barn: familiesentrert sykepleie2012Bok (Övrigt vetenskapligt)
    Abstract [no]

    Denne boken fokuserer på sykepleierens funksjon overfor syke barn og deres familie, på familiesentrert sykepleie.I tillegg til kompetanse i forhold til syke barn må sykepleieren ha kompetanse til samhandling med foreldrene og søsken. Boken er et samarbeid mellom tre forfattere. Barnesykepleier, dr.med.sc. og lektor Anne Wennick har skrevet om sykepleie til barn med ulike symptomer. Psykolog Hanna Friis Steen har skrevet om utviklingspsykologiske aspekter som er av betydning når barn er syke. Sykepleier, dr.polit. og 1. amanuensis Sidsel Tveiten har skrevet generelt om sykepleiefaglige, pedagogiske og etiske aspekter ved sykepleie til barn og om sykepleierens pedagogiske funksjon i samhandling med barnet og familien.

  • 24.
    Dychawy Rosner, Irena
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Shleev, Sergey
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Bahtsevani, Christel
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Triad handledning: en handledningsmodell för introduktion av empiriska koncept i sjuksköterskeutbildningen2012Bok (Övrigt vetenskapligt)
    Abstract [sv]

    Utbildning inom universitet och högskola ställs ständigt inför olika beslut som berör pedagogiska angreppssätt för vuxnas lärande. Denna bok handlar om en praktik där utbildning, forskning och forskarutbildning vävs samman i en handledningsmodell. Den föreslagna TRIAD modellen bygger på triadiska episoder där tre nivåer av kunnande sammanförs. Förloppet i själva handledningssituationen bygger på situationsbaserad lärande och koncentreras kring empiri och vetenskaplig metodologi.Triad handledningen bildar ramar kring vetenskapliga koncept där undervisningen på grundnivån kan forskningsförankras. En slutsats som dras är att studenten på både grund- och forskarnivån får utveckla och tillämpa sina färdigheter i realistiska och verklighetsanpassade praktiker.

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  • 25.
    Wennick, Anne
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV).
    Huus, Karina
    What it is like being a sibling of a child newly diagnosed with type 1 diabetes: an interview study2012Ingår i: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 9, nr 3, s. 88-92Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Although previous studies have stressed that having a brother or sister with a chronic condition may affect the healthy sibling, few have specifically focused on healthy siblings of children with type 1 diabetes. Hence, this study aimed to illuminate what it is like to be a brother or sister of a child newly diagnosed with type 1 diabetes. Individual interviews were conducted with seven siblings aged 10–17 years(median=12)from six different families. Each interview was analysed using content analysis. Three different categories emerged – Living differently, Being concerned and Participating in caring for the affected child – indicating that, for the healthy sibling, the illness entails a transformed everyday life including worry about the affected child and the need to help in the home. In conclusion, the paediatric health care service may need to develop new strategies to meet the siblings’ desired level of knowledge in educational team sessions related to diabetes. As the sibling relationship is probably the longest one that an affected child will experience in her/his lifetime, it is worth investing in it to promote this long-term support resource. Eur Diabetes Nursing 2012; 9(3): 88–92

  • 26.
    Wennick, Anne
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV). Lund University.
    Hallström, Inger
    Lund University.
    Lindgren, Björn
    Lund University; University of Gothenburg; National Bureau of Economic Research, Cambridge, MA, United States.
    Bolin, Kristian
    Lund University.
    Attained education and self-assessed health later in life when diagnosed with diabetes in childhood: a population-based study2011Ingår i: Pediatric Diabetes, ISSN 1399-543X, E-ISSN 1399-5448, Vol. 12, nr 7, s. 619-626Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Previous studies have reported conflicting findings on academic achievement in children with type 1 diabetes, and generally lower self-assessed health status among respondents with diabetes. Objective: Thus, in this study, using the theoretical framework of the human-capital model, a population-based survey data set for Sweden, and explanatory variables following predictions from theory and previous empirical human-capital studies, individuals diagnosed with diabetes before the age of 19 were examined whether they differ from the general population at the same age concerning (i) educational level attained and (ii) self-assessed health later in life. Special attention was devoted to the association between education and health. Subjects: A set of pooled cross-sectional population survey data complemented with register data, comprising 20 670 individuals (of whom 106 individuals were diagnosed with diabetes), aged 19–38 yr, from 1988 to 2000, was created from the Swedish Biennial Survey of Living Conditions. Method: The influence of childhood diabetes was analyzed using multiple regression analysis, controlling for educational level, wage, sex, age, marital status, and parental ethnicity. Results: Childhood diabetes was associated with lower levels of attained education and self-assessed health in comparison with the general population. More educated individuals reported better health, though. Conclusions: In terms of the rapid increase in the incidence of diabetes in many countries, it is important to bear in mind that investments made both in education and in health, early in life, may facilitate the capability of the individual to experience healthy time later in life.

  • 27.
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Barn med astma2009Ingår i: Pediatrisk omvårdnad / [ed] Inger Hallström, Tor Lindberg, Liber, 2009, s. 62-63Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 28.
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Barn med bronkiolit orsakad av RS-virus2009Ingår i: Pediatrisk omvårdnad / [ed] Inger Hallström, Tor Lindberg, Liber, 2009, s. 20-22Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 29.
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Barn med meningit2009Ingår i: Pediatrisk omvårdnad / [ed] Inger Hallström, Tor Lindberg, Liber, 2009, s. 24-25Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 30.
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Barn med pneumoni2009Ingår i: Pediatrisk omvårdnad / [ed] Inger Hallström, Tor Lindberg, Liber, 2009, s. 22-23Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 31.
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Barn med pyelonefrit2009Ingår i: Pediatrisk omvårdnad / [ed] Inger Hallström, Tor Lindberg, Liber, 2009, s. 25-26Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 32.
    Wennick, Anne
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Barn med sepsis2009Ingår i: Pediatrisk omvårdnad / [ed] Inger Hallström, Tor Lindberg, Liber, 2009Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 33.
    Wennick, Anne
    et al.
    Malmö högskola, Fakulteten för hälsa och samhälle (HS).
    Tiberg, Iren
    Barn med typ-1 diabetes2009Ingår i: Pediatrisk omvårdnad / [ed] Inger Hallström, Tor Lindberg, Liber, 2009, s. 108-115Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 34.
    Wennick, Anne
    et al.
    Lund University, Sweden.
    Lundqvist, Anita
    Lund University, Sweden.
    Hallström, Inger
    Lund University, Sweden.
    Everyday experience of families three years after diagnosis of type 1 diabetes in children: a research paper2009Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 24, nr 3, s. 222-230Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this study was to illuminate the everyday experience of family members 3 years after a child had been diagnosed as having Type 1 diabetes. Qualitative interviews were conducted with 35 family members in 11 families and analyzed using a content analysis. The results were identified as eight categories describing the family member's everyday experiences: (a) knowledge and tried experience give skills, (b) capricious blood sugar level, (c) ambivalent parenthood, (d) stressful daily planning, (e) physical activity as pleasure and annoyance, (f) fear of losing control, (g) a private and public concern, and (h) needed and not needed medical service. Three years after a child was diagnosed as having diabetes, the illness had become a natural element of the families' life; however, it affected the daily life of family members to different degrees.

  • 35.
    Wennick, Anne
    et al.
    Lund University.
    Hallström, Inger
    Lund University.
    Families' lived experience one year after a child was diagnosed with type 1 diabetes2007Ingår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 3, nr 60, s. 299-307Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This paper is a report of a study to elucidate families' lived experience of diabetes one year after a child was diagnosed with type 1 diabetes. BACKGROUND: The incidence of type 1 diabetes is rapidly increasing worldwide, with a shift towards younger age groups. This illness is treated by means of an intensive management regimen that often disrupts the child's usual activities and requires disease-focused behaviours from the child and his or her family. However, research elucidating families' lived experience from the perspective of all its members is sparse. METHOD: A hermeneutic phenomenological study was carried out in 2004, based on interviews one year after diagnosis with 11 consecutively chosen Swedish-speaking family members with children aged between 9 and 14 years. FINDINGS: The families described their one year of lived experience as living an ordinary yet different life. They experienced their lives to be neither particularly difficult nor as easy as they had been before the child was diagnosed with diabetes. Related themes were 'feeling acceptance yet frustration', 'being healthy yet invisibly ill', 'feeling independent yet supervised' and 'feeling confident yet insecure'. CONCLUSION: It may be helpful if healthcare professionals make use of the knowledge and experience of families living with the illness to meet their specific needs, especially when the affected child is experiencing fluctuating blood sugar levels. Thus, health-promoting collaboration should be tailor-made for every individual and proceed from each family's everyday life.

  • 36.
    Wennick, Anne
    Lund University.
    Living With Childhood Diabetes: Family experiences and Long-Term effects2007Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
    Abstract [en]

    The overall aim of this thesis was to investigate families’ experiences when a child is diagnosed as having type 1 diabetes, and at one and three years after diagnosis. Since childhood health and the circumstances around it in the family have been shown to have a lasting impact on adult health and circumstances, an additional aim was to examine the long-term effect of childhood diabetes on education level attained and self-assessed health. The work described in this thesis was carried out using a combination of qualitative and quantitative methods. In study 1, a longitudinal qualitative study design was used with interviews for data collection, and in study 2 a cross-sectional quantitative study design was used with register data based on structured interviews for data collection. The sample of the first study (papers I–III) was made through a consecutive series of families with children diagnosed with type 1 diabetes in 2003, who were interviewed individually in 2003 (n=12), 2004 (n=11), and then again in 2006 (n=11). Data collected in 2003 and 2004 was analysed using a hermeneutic phenomenological approach, whereas data from 2006 was analysed using latent content analysis. The sample from the second study (paper IV) was made through a set of pooled cross-sectional population survey data, supplemented with register data. It comprised 106 individuals diagnosed with diabetes before age 19 and 20,564 individuals not diagnosed before age 19, aged 19–38, who were interviewed for the Swedish Biennial Survey of Living Conditions (Undersökningar om Levnadsförhållanden, ULF). The data were analysed using two multiple regressions: one for educational level attained and one for self-assessed health, using a human-capital model as a theoretical framework. Findings in study 1 demonstrate that after the affected child had been diagnosed with type 1 diabetes, the family entered an ongoing learning process where they learnt about the inevitable and the extent. The learning process was a recurrent phenomenon whenever the families were exposed to new situations and contexts. One year after diagnosis the family described that they were living an ordinary yet different life, and the family experienced acceptance, health, independence and confidence during periods of well-balanced blood glucose levels. The integration of the illness into the family’s everyday life was, however, obstructed during episodes of unbalanced blood glucose levels, which affected the whole family negatively. Three years after diagnosis all family members had acquired a sound basis for managing the diabetes regimen. They had learnt more about diabetes, which was a natural element of the families’ everyday life, although still affecting the family members differently in their daily life. Furthermore, in study 2, controlling for a set of independent variables, childhood diabetes was found to be associated with lower levels of attained education and self-assessed health in comparison with the general population. More educated individuals reported better health, though. Hence, further research is needed to decide which method of treatment is most beneficial for the individual family when a child is striken with type 1 diabetes. The importance of showing receptivity to each family member’s needs and experiences was further suggested when the families were interviewed three years after the diagnosis, as it revealed that the illness affected the daily life of family members to a different degree. It is also important early in life to strengthen the possibility of having and reaching an agreeable level of attained education for children diagnosed with diabetes, as this may lead to increased health for the child later in life.

  • 37.
    Wennick, Anne
    et al.
    Lund University, Lund, Sweden.
    Hallström, Inger
    Lund University, Lund, Sweden.
    Swedish families' lived experience when a child is first diagnosed as having insulin-dependent diabetes mellitus: An ongoing learning process2006Ingår i: Journal of Family Nursing, Vol. 4, nr 12, s. 368-389Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Sweden has the second highest nationwide incidence of childhood diabetes in Europe, and it is rapidly increasing. The diagnosis of Type 1 insulin-dependent diabetes mellitus has been indicated as a crisis in the life of the individual and family. The purpose of this study was to elucidate the whole family's lived experience when a child in the family is diagnosed as having diabetes. It was designed as a longitudinal, descriptive, inductive study including qualitative interviews. Family members in 12 families were recruited from a children's university hospital in Sweden to participate in a series of three interviews: when first diagnosed, and 1 and 3 years after diagnosis. This article derives from the first interview. All invited families agreed to participate and were interviewed 1 to 3 months after diagnosis using a hermeneutic phenomenological approach. The family's lived experience was identified as an ongoing learning process including learning about the inevitable and learning about the extent. The learning process was experienced as a recurrent phenomenon when the family was exposed to new situations or contexts. Therefore, individualized treatment may reduce the difficulties experienced in coping with the diabetic management regimen after discharge, thus making the transition smoother.

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