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Transfer to adult care: experiences of young adults with congenital heart disease
Malmö högskola, Faculty of Health and Society (HS), Department of Care Science (VV).ORCID iD: 0000-0002-9679-0654
2015 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 30, no 5, p. e3-e10Article in journal (Refereed)
Abstract [sv]

Mer än 90 % av barn med medfödda hjärtfel överlever upp i vuxen ålder tack vare utveckling av hjärtkirurgi och medicinsk behandling. Intervjuer med 16 unga vuxna med medfödda hjärtfel i syfte att undersöka deras upplevelser av hur överföringen från barnsjukvård till vuxenvård genomfördes. Analysen identifierade fem tema: Att känna trygghet i överföringen, Att känna tillit till vården, Att förväntas bli delaktig i vården, Att ta över ansvaret för sin hälsa är en process, och Att sakna kunskap leder till osäkerhet. Sammanfattningsvis, en strukturerad och gradvis överföring är nödvändig för att få informanterna att axla ansvaret för sin egenvård.

Abstract [en]

More than 90% of children born with congenital heart disease survive into adulthood due to successes of cardiac surgery and medical management. Interviews with 16 young adults with congenital heart disease to explore their experiences of transfer from pediatric to adult care were performed. The analysis identified five themes; Feeling secure during the transfer process, Experiencing trust in the care, Expecting to be involved, Assuming responsibility for one's health is a process and Lack of knowledge leads to uncertainty. In conclusion; a structured and gradual transfer process was necessary to enable the informants to shoulder the responsibility for self-care.

Place, publisher, year, edition, pages
Elsevier, 2015. Vol. 30, no 5, p. e3-e10
Keywords [en]
Congenital heart disease, Experiences, Transition, Transfer to adult care, Young adults
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:mau:diva-4662DOI: 10.1016/j.pedn.2015.05.025ISI: 000360980800001PubMedID: 26199097Scopus ID: 2-s2.0-84940896223Local ID: 19291OAI: oai:DiVA.org:mau-4662DiVA, id: diva2:1401496
Available from: 2020-02-28 Created: 2020-02-28 Last updated: 2024-02-05Bibliographically approved

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Bramhagen, Ann-Cathrine

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