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Prevention i den moderna genteknikens tidevarv: Att lära av funktionshinderrörelsen
Malmö University, Faculty of Health and Society (HS), Department of Social Work (SA). Malmö University, Centre for Sexology and Sexuality Studies (CSS).ORCID iD: 0000-0001-9039-2201
Malmö University, Faculty of Health and Society (HS), Department of Social Work (SA).ORCID iD: 0000-0003-3571-4620
2025 (Swedish)In: Socialmedicinsk Tidskrift, ISSN 0037-833X, E-ISSN 2000-4192, Vol. 102, no 1, p. 49-58Article in journal (Refereed) Published
Abstract [sv]

Denna artikel analyserar rapporten ”A Disability Rights Analysis of Genetic Technologies: Report on a National Convening of Disability Rights Leaders” (Generations Ahead 2009) för att undersöka perspektiv på prevention av genetiska funktionsnedsättningar. Rapporten betraktas som ett alternativt samtal jämfört med de offentliga samtal om prevention och genteknik som förs i exempelvis Sverige. Inom funktionshinderforskningen är preventionens sociala konsekvenser en pågående diskussion, och det argumenteras för att en ny form av eugenik har vuxit fram. Eugeniken är i dag ett individprojekt där ny genteknik, såsom fosterdiagnostik, erbjuds blivande familjer som sedan måste fatta beslut om graviditeten ska avbrytas eller inte. I relation till dessa förändringar argumenteras i artikeln för att det är centralt att hitta andra sätt att resonera kring de sociala fenomen som preventionen skapar.

Abstract [en]

This article analyses the report “A Disability Rights Analysis of Genetic Technologies: Report on a National Convening of Disability Rights Leaders” (Generations Ahead 2009) to examine perspectives on prevention of gene-tic disabilities. The text is considered an alternative conversation compared to public conversations on preventive use of genetic technologies, such as those taking place in Sweden. Within disability research, the social conse-quences of prevention is an ongoing discussion, with arguments suggesting that a new form of eugenics has emerged. Today, eugenics is an individual project where new genetic technologies, such as prenatal screening, are of-fered to prospective families who must then decide whether to terminate the pregnancy or not. This article argues that it is central to find other ways to reason about the social phenomena that prevention creates.  

Place, publisher, year, edition, pages
Stiftelsen Socialmedicinsk tidskrift , 2025. Vol. 102, no 1, p. 49-58
Keywords [sv]
Funktionsnedsättning, Eugenik, Medicinsk etik, Identitet, Hälsa
National Category
Social Work
Research subject
Health and society studies
Identifiers
URN: urn:nbn:se:mau:diva-75675DOI: 10.62607/smt.v102i1.47050OAI: oai:DiVA.org:mau-75675DiVA, id: diva2:1955350
Available from: 2025-04-29 Created: 2025-04-29 Last updated: 2025-05-06Bibliographically approved

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Hansson, KristoferWiszmeg, Andréa

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