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Community, prevention and disability in the future of biomedical science
Malmö University, Faculty of Health and Society (HS), Department of Social Work (SA).ORCID iD: 0000-0001-9039-2201
Malmö University, Faculty of Health and Society (HS), Department of Social Work (SA).ORCID iD: 0000-0003-3571-4620
2024 (English)Conference paper, Oral presentation only (Other academic)
Abstract [en]

In this paper presentation we argue that the international disability movement makes visible that modern medical prevention may need to be understood based on the term community. Through the term, it is assumed that there is a culture within the disability movement that creates not only community, but also a strong self-identity linked to biological facts. Within some groups, this self-identity is very strong and not infrequently the self-identity can be linked to a pride in who one is and to which group one belongs. Based on this community, the phenomenon of medical prevention needs to be problematized when modern biotechnologies are introduced into healthcare.

A desire for increased prevention in society not only creates a desire to, for example, screen to detect genetic changes at the fetal stage, but can also lead to expectant parents terminating the pregnancy. When fewer and fewer children are born with a disability, there is also the risk that the group becomes impoverished and the community dissolves. The members simply become fewer. The disability movement sometimes sees this as a struggle and that one should not betray one's community.

We therefore will argue that community is an important starting point for understanding and problematizing the many, and difficult, approaches that exist in relation to today's modern biomedical technologies. It is easy to focus solely on the pregnant woman's right to choose in this complex discussion and not bring in or discuss other perspectives. Based on the question, Shakespeare has, for example, pointed out that a change in society's attitudes to disability could be more effective than using modern biotechnology. In our paper, we wish to examine the concept of community in more detail and, based on the concept, make a reading of how this discussion is conducted internationally within the disability movement.

Place, publisher, year, edition, pages
Leeds, 2024.
Keywords [en]
community, biomedical, prevention, screen
National Category
Social Work
Research subject
Health and society
Identifiers
URN: urn:nbn:se:mau:diva-71547OAI: oai:DiVA.org:mau-71547DiVA, id: diva2:1904641
Conference
Disability Studies Conference, University of Leeds, September 3-5 2024
Available from: 2024-10-09 Created: 2024-10-09 Last updated: 2024-10-11Bibliographically approved

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Hansson, KristoferWiszmeg, Andréa

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CiteExportLink to record
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Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
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