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Development and content validity testing of a colonoscopy-specific patient-reported experience measure: the Patient Experience Colonoscopy Scale (PECS)
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV).ORCID iD: 0000-0003-1213-5618
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV).ORCID iD: 0000-0001-5493-8334
Lund Univ, Skane Univ Hosp, Dept Gastroenterol, Lund, Sweden..
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV). Skane Univ Hosp, Dept Cardiothorac & Vasc Surg, Malmö, Sweden..ORCID iD: 0000-0002-1437-5060
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2024 (English)In: Journal of Patient-Reported Outcomes, ISSN 2509-8020, Vol. 8, no 1, article id 32Article in journal (Refereed) Published
Abstract [en]

BackgroundIn endoscopic care, favourable patient experiences before, during and after a colonoscopy are essential for the patient's willingness to repeat the procedure. To ensure that significant experiences are measured, patients should be involved in creating the measurement instruments. Thus, the aim of the present study was to develop a colonoscopy-specific PREM by (1) operationalising patient experiences before, during and after a colonoscopy procedure and (2) evaluating its content validity.MethodsThe colonoscopy-specific PREM was developed in two stages: (1) operationalisation with item generation and (2) content validity testing. A previously developed conceptual model, based on a systematic literature review that illustrates patients' (n = 245) experiences of undergoing a colonoscopy, formed the theoretical basis. To assess the degree to which the PREM reflected patients' experiences before, during and after a colonoscopy procedure, content validity was tested-through face validity with healthcare professionals (n = 4) and cognitive interviews with patients (n = 14) having experienced a colonoscopy. Content validity index (CVI) was calculated to investigate the relevance of the items.ResultsThe Patient Experience Colonoscopy Scale (PECS) is a colonoscopy-specific PREM consisting of five different constructs: health motivation, discomfort, information, a caring relationship and understanding. Each construct was defined and generated into a pool of items (n = 77). After face-validity assessment with healthcare professionals, a draft 52-item version of the PECS was ready for content validity testing by the patients. During cognitive interviews the patients contributed valuable insights that led to rewording and removal of items. Results from the CVI suggest that the PECS and its content are relevant (I-CVI range 0.5-1, S-CVI/Ave = 0.86). The final PECS consists of 30 items representing a colonoscopy-specific PREM.ConclusionThe PECS is a new 30-item PREM instrument designed for adult elective colonoscopy patients after they have undergone the procedure. Each item in the PECS derives from a conceptual model based on a systematic literature review. Patients and healthcare professionals were involved in developing the PECS, which measures colonoscopy-specific patient experiences before, during and after the procedure. The content validity testing positively contributed to the development of the PECS. Psychometric properties need to be evaluated further.

Place, publisher, year, edition, pages
Springer Nature, 2024. Vol. 8, no 1, article id 32
Keywords [en]
Cognitive interviews, Colonoscopy, Content validity, Content validity index, Face validity, Instrument, Patient-reported experience measure, Patient experience, Quality improvement, Questionnaire
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Nursing
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URN: urn:nbn:se:mau:diva-66544DOI: 10.1186/s41687-024-00710-2ISI: 001186761100002PubMedID: 38498225Scopus ID: 2-s2.0-85188084927OAI: oai:DiVA.org:mau-66544DiVA, id: diva2:1847575
Available from: 2024-03-28 Created: 2024-03-28 Last updated: 2024-03-28Bibliographically approved

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Rosvall, AnnicaAxelsson, MalinKumlien, ChristineAnnersten Gershater, Magdalena

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