Background: Every year, 1500-2000 people fall ill with schizophrenia in Sweden, which is the most common and serious of the psychotic diseases. Schizophrenia is characterized by repeated onset of psychosis and an occurrence of mental disability. These people are often in need of coordinated efforts from social services and health care. Aim: The aim of this literature study was to investigate how people with schizophrenia experience their participation in healthcare and to shed light on their experiences. Method: The study is a literature review that has been based on ten articles with an empirical and qualitative approach. The studies were reviewed and analyzed using evidence-based methods. Results: In the results, six categories were compiled to answer the purpose. The results show that 1) people with schizophrenia experience low participation and 2) an asymmetric distribution of power. Furthermore, 3) experiences of stigma and 4) unwillingness to seek care were also mentioned. The people 5) want their wishes and needs to be validated and 6) no decisions to be made without their approval. Conclusion: A good relationship with healthcare staff is the prerequisite for the person to experience a sense of participation. Increased sense of participation in turn leads to increased compliance with prescriptions and increased self-esteem.