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Disability in the margins: handling uncertainty when seeking care in healthcare
Malmö University, Faculty of Health and Society (HS), Department of Social Work (SA).ORCID iD: 0000-0001-9039-2201
2023 (English)In: SIEF2023: Living Uncertainty, 2023Conference paper, Oral presentation only (Refereed)
Abstract [en]

This paper explores how people with disabilities encounter and manage limits and uncertainty within the Swedish healthcare sector. Previous research has pointed out that individuals with different forms of disability often meet health-care professionals that lack knowledge about their specific conditions. These limitations have also been defined as a form of medical paternalism, where the professional's knowledge is emphasized over the patient’s knowledge. Within disability research, this displacement has been categorized as a medical model in contrast to a social model where the patient's body is not the focus, but rather the context in which the individual lives. This is a theoretical model that can be viewed through cultural analytical lenses to explore liminal healthcare practices. This paper addresses these questions based on interviews done with people who have lived with disabilities and their experiences of seeking care in the healthcare sector. What kind of embodied experiences of liminality do they have in relation to healthcare? How do they navigate health inequalities in relation to liminal spaces of healthcare? In what ways does this create uncertainties in everyday life for people living with disabilities? One of the findings in the interviews is that it is not only the professionals’ lack of knowledge that generates inequalities, but also the material infrastructure in, for example, the hospitals. Therefore, in this paper it will be suggested that the medical model from disability research should also be elaborated with cultural analytical perspective on material culture.

Place, publisher, year, edition, pages
2023.
Keywords [en]
Disability, Healthcare, Knowledge, Social model, Care
National Category
Ethnology
Research subject
Health and society
Identifiers
URN: urn:nbn:se:mau:diva-61618DOI: 10.22582/SIEF2023prgOAI: oai:DiVA.org:mau-61618DiVA, id: diva2:1778413
Conference
SIEF2023 Living Uncertainty 16th Congress of Société Internationale d’Ethnologie et de Folklore (SIEF), 7-10 June 2023, Brno, Czech Republic.
Available from: 2023-07-01 Created: 2023-07-01 Last updated: 2023-07-03Bibliographically approved

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Hansson, Kristofer

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CiteExportLink to record
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Citation style
  • apa
  • ieee
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  • vancouver
  • Other style
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  • de-DE
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