Gestational Throphoblastic Disease (GTD) is a collective name for a group of premalignant and malignant tumor forms originating from pregnancy. The medical outcomes of the disease have been well explored, and the survival rate is between 90% and 100%. However, there is a need to focus on the women´s continued quality of life ande the impact of the disease and treatment on psychological symptomatology, sexual function and wellbeing.

This aim this study was to explore the experiences of ten women with gestational trophplastic neoplasia (GTN) who underwent treatment with chemotherapy during the period 2015-2019. The aim was also to explore what kind of support the women had needed. The participants werer between 19-41 years of age when they got the diagnose. Eight of the women had a planned or wanted pregnancy, and two of the women had a pregnancy they did not want.

A qualitative study with a phenomenological approach was choosen using in-depth semi structures interviews. The interviews took about on hour each, and they werer recorded and transcribed verbatim.Thematic analyses werer used to process the material. Themes that were found was body image, sexuality and fertility, pregnancy, disease, death and need for support. The women´s stories about the exeprience of GTN points out the heterogenous character, but all paticipants still suffered from the disease in different ways. Most of them did not report any physical disability, but they all described effects on their psychosocial being. The most important result was how hard it was to deal with the lost pregnancy and the disease, and the feelings connected with it. They descrided that they would have needed more support to process it, and that did not understand the need of support att the beginning due to the shock. All women described that they werer left alone with their mixed feelings of the lost pregnancy.

The results of the study points out the need of introducing a professional who can provide psycosocial supprot at the time of being diagnosed.One important part of the support should be to explore how the loss of the pregnancy affect the women ande partner, if there is one.