Children's experiences of information, advice and support from healthcare professionals when their parent has a cancer disease: Experiences from an oncological outpatient department
2021 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 50, article id 101893Article in journal (Refereed) Published
Abstract [en]
PURPOSE: This study was carried out in order to evaluate children's experiences after taking part in the pilot clinical intervention "See Me" aimed at supporting children as relatives.
METHOD: A qualitative explorative design with interviews was chosen, with analyses using an inductive approach. Interviews were conducted with 19 children (9 aged 7-12 years and 10 aged 13-18 years). The younger children were asked to draw a picture of a person in hospital, using the Child Drawing: hospital (CD:H) instrument to measure the child's level of anxiety. The older children completed the Caring Professional Scale (CPS) as a measure of the caring approach in their encounter with the nurse.
RESULTS: The interviews with the children show that: they felt expected and welcomed at the hospital; they needed knowledge about their parent's situation; they needed information and participation based on their individual situation; and they needed the nurse to offer them information and support. The results from the pictures showed that one child had above-average levels of anxiety. The older children reported that the nurses were Competent Practitioners, but to a lesser degree that they were Compassionate Healers.
CONCLUSIONS: The results of this pilot study indicate that the structure of "See Me" could be used as a starting point to ensure that children as relatives receive information, advice, and support. Further the results indicate that both CD:H and CPS could be used to evaluated children's experiences of support when a parent has a long-term illness.
Place, publisher, year, edition, pages
European Oncology Nursing Society , 2021. Vol. 50, article id 101893
Keywords [en]
Cancer, Children as relatives, Clinical intervention, Support, Sweden
National Category
Nursing
Identifiers
URN: urn:nbn:se:mau:diva-39749DOI: 10.1016/j.ejon.2020.101893ISI: 000632612300006PubMedID: 33465701Scopus ID: 2-s2.0-85099401929OAI: oai:DiVA.org:mau-39749DiVA, id: diva2:1521735
2021-01-252021-01-252024-02-05Bibliographically approved