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Models of support to family members during the trajectory of cancer: A scoping review
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV). Department of Pediatrics, Skåne University Hospital.ORCID iD: 0000-0001-8700-4490
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV).ORCID iD: 0000-0002-8684-2537
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV).ORCID iD: 0000-0002-1735-9437
Malmö University, Faculty of Health and Society (HS), Department of Care Science (VV).ORCID iD: 0000-0002-8884-1490
2021 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 30, no 21-22, p. 3072-3098Article in journal (Refereed) Published
Abstract [en]

Aims and objectives To map the existing literature on support models provided to family members during the cancer trajectory. Background Cancer diagnosis, treatment and survivorship have a profound influence on the surrounding family members. This scoping review is part of the development of a support model for family members of persons diagnosed with colorectal cancer. Design The method was guided by the Arksey and O'Malley framework, described in the Joanna Briggs Institute guidelines, and the reporting is compliant with PRISMA-ScR Checklist. Searches were conducted in PubMed, CINAHL and PsycINFO from November 2019-February 2020 with no limitation in publication year or study design. Complementing searches were conducted in reference lists and for grey literature, followed by an additional search in September 2020. Inclusion criteria were primary research about support provided by health care, to family members, during cancer, of an adult person, in Swedish or English, of moderate or high methodological quality. Quality was assessed using the Joanna Briggs Institute critical appraisal tools. Data were extracted using a charting form. Result A total of 32 studies were included in the review describing 39 support models. Conclusion The mapping of the existing literature resulted in the identification of three themes of support models: psychoeducation, caregiver training and psychological support. In addition, that future research should target a specific diagnosis and trajectory phase as well as include family members and intervention providers in model development. Relevance for clinical practice Knowledge from the literature on both the needs of the family members and existing support models should be incorporated with the prerequisites of clinical practice. Clinical practice should also be complemented with structured assessments of family members' needs conducted regularly.

Place, publisher, year, edition, pages
John Wiley & Sons, 2021. Vol. 30, no 21-22, p. 3072-3098
Keywords [en]
cancer, cancer trajectory, family, family caregivers, implementation, intervention, nurse, psychosocial support, support model, supportive care
National Category
Nursing
Identifiers
URN: urn:nbn:se:mau:diva-42329DOI: 10.1111/jocn.15832ISI: 000648738600001PubMedID: 33973285Scopus ID: 2-s2.0-85105911113OAI: oai:DiVA.org:mau-42329DiVA, id: diva2:1557637
Available from: 2021-05-26 Created: 2021-05-26 Last updated: 2024-02-05Bibliographically approved

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Samuelsson, MariaWennick, AnneJakobsson, JennyBengtsson, Mariette

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