Inflammatory bowel disease, IBD, are a common disease among adolescence and young adults. The prevalence is peaking among 15-19 olds, and is increasing globally. The genetically component is the most frequent risk factor and the disease gives symptoms such as abdominal pain, diarrhoea, weight loss, gastrointestinal bleeding, inhibited growth and anaemia. The disease requires lifelong treatment and may have a negative impact on life.
Chronic diseases and illness amongst adolescents and young adults are also associated with an increased risk of emotional and behavioural difficulties. There are research focusing on general health related quality of life (HRQoL) factors among adolescence and young adults. The negative self-image of the body described amongst this group is associated with the symptoms caused by disease as well as the pharmacological side- effects.
Considering the disease and the negative impact on daily life, with constants anxiety regarding abdominal activities and other symptoms such as, bad odour, problems retaining faeces in combination with decreasing quality of life, we can assume that IBD also has an impact on sexual health.
Adolescence and young adulthood are a significant period in life, regarding development of sexuality and sexual health, which according to WHO (2006) are described as a “condition of physical, emotional, mental and social wellbeing in relation to sexuality”, and is one of the determinants characterizing god quality of life.
The aim of the project is to illuminate experiences of sexual health among adolescences and young adults diagnosed with IBD. Another focal point of the project is to interview health-care personnel regarding their experiences working with adolescence and young adults in relation to sexual health.