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Ekdahl, S., Carlson, E., Idvall, E. & Perseius, K.-I. (2024). Need of support for significant others to persons with borderline personality disorder: A Swedish focus groupstudy. Scandinavian Journal of Caring Sciences, 38(1), 240-248
Öppna denna publikation i ny flik eller fönster >>Need of support for significant others to persons with borderline personality disorder: A Swedish focus groupstudy
2024 (Engelska)Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 38, nr 1, s. 240-248Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background: Being a significant other (SO) to a person with borderline personalitydisorder (BPD) affect their health. High incidence of substance use disorder, posttraumaticstress disorder, stress, fear, anxiety, depression, family burden and griefare common. Some specific therapies for BPD, have included support to SOs, howeverresources are scarce and to participate in the support it assumes that the personwith BPD is included in these therapies. Although the SO support has been shown tobe helpful, they all have a similar structure, and only a small exclusive group of SOshave access to the support.

Aim: The aim was to describe experiences and need of support for significant othersto persons with borderline personality disorder from the perspective of themselvesand of health care workers.

Methods: Data was collected via two focus groups. One with five SOs to personswith BPD, one with five health care workers. Two interview sessions in each groupwere conducted and data were analysed with qualitative content analysis. The studywas approved by the research ethics committee of Lund (2016–1026).

Results: The results revealed four themes; not being seen by health care professionalscreates hopelessness, being seen by healthcare professionals creates trust, experienceof support - helpful or shameful and the step from loosely structured supportto a structured support group. Both groups expressed a need for further support as acomplement to already existing support.

Conclusions: The need of support is extensive. The results suggest a professionalcoordinator intended for SOs and peer support groups not linked to a particular psychiatrictreatment yet offering support in a structured way. Further studies examiningthese complements to existing support, is therefore recommended.

Ort, förlag, år, upplaga, sidor
Wiley-Blackwell Publishing Inc., 2024
Nyckelord
borderline personality disorder, family, focus group interviews, relatives, support
Nationell ämneskategori
Omvårdnad
Forskningsämne
Vårdvetenskap
Identifikatorer
urn:nbn:se:mau:diva-63180 (URN)10.1111/scs.13221 (DOI)001085098200001 ()37846882 (PubMedID)2-s2.0-85174242640 (Scopus ID)
Tillgänglig från: 2023-10-17 Skapad: 2023-10-17 Senast uppdaterad: 2024-04-11Bibliografiskt granskad
Svensson, B., Idvall, E., Nilsson, F. & Liuba, P. (2020). Health-Related Quality of Life in Children With Earlier Surgical Repair for Right Ventricular Outflow Tract Anomalies and the Agreement Between Children and Their Parents.. Frontiers in Cardiovascular Medicine, 7, Article ID 66.
Öppna denna publikation i ny flik eller fönster >>Health-Related Quality of Life in Children With Earlier Surgical Repair for Right Ventricular Outflow Tract Anomalies and the Agreement Between Children and Their Parents.
2020 (Engelska)Ingår i: Frontiers in Cardiovascular Medicine, E-ISSN 2297-055X, Vol. 7, artikel-id 66Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

HRQoL problems as perceived by children with RVOT anomalies are best identified with the PedsQL Cardiac Module and relate mostly to cognitive and physical functioning. The agreement findings suggest the need to take into account both child- and parent reports in the assessment of HRQoL.

Ort, förlag, år, upplaga, sidor
Frontiers Media S.A., 2020
Nyckelord
HRQoL, PedsQL questionnaire, agreement, children, complex right ventricular outflow tract anomalies
Nationell ämneskategori
Pediatrik
Identifikatorer
urn:nbn:se:mau:diva-17341 (URN)10.3389/fcvm.2020.00066 (DOI)000533347900001 ()32411726 (PubMedID)2-s2.0-85117454216 (Scopus ID)
Tillgänglig från: 2020-05-19 Skapad: 2020-05-19 Senast uppdaterad: 2024-02-05Bibliografiskt granskad
Hylén, M., Akerman, E., Idvall, E. & Alm-Roijer, C. (2020). Patients´ experiences of pain in the intensive care - The delicate balance of control.. Journal of Advanced Nursing, 76(10), 2660-2669
Öppna denna publikation i ny flik eller fönster >>Patients´ experiences of pain in the intensive care - The delicate balance of control.
2020 (Engelska)Ingår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 76, nr 10, s. 2660-2669Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

AIM: To explore the patients´ experiences of pain when being cared for in the intensive care.

DESIGN: An exploratory, qualitative design was chosen.

METHOD: Interviews were performed with patients (October 2015-March 2017) within a week of post-intensive care (N = 16). Thematic analysis was used as method for analysis.

RESULTS: The findings generated two themes - a lack of control and to struggle for control. Pain was described as overwhelming, both in body and mind and generating the experience of a lack of control, with feelings of incapacitation, isolation, and having their needs unmet. Feeling in control of the pain and thus in control of the situation was experienced as a constant struggle. Well-planned care, finding ways to handle the pain and good communication were all helpful in this struggle.

CONCLUSION: The participants recalled their experience of pain in the ICU and control seems to be crucial for how pain is experienced. They experienced a lack of control due to not only the pain but also the treatment, which can be avoided by the nurse continuously evaluating and individualising the care. Balanced care, meeting the patients' needs and good communication helps the patient feel more in control when experiencing pain.

IMPACT: The experience of pain is dependent on control for the intensive care patient. The nurse may help them gain control and thereby handle the experience of pain through including the patient, striving for better communication and implementing individualised care that continuously assesses and treats pain.

Ort, förlag, år, upplaga, sidor
John Wiley & Sons, 2020
Nyckelord
critical care nursing, intensive care nursing, nursing, pain, pain experience, pain management, patient experience
Nationell ämneskategori
Omvårdnad
Identifikatorer
urn:nbn:se:mau:diva-18363 (URN)10.1111/jan.14503 (DOI)000567067200001 ()32808692 (PubMedID)2-s2.0-85089531459 (Scopus ID)
Tillgänglig från: 2020-09-23 Skapad: 2020-09-23 Senast uppdaterad: 2024-03-28Bibliografiskt granskad
Holst-Hansson, A., Vejzovic, V., Idvall, E. & Wennick, A. (2020). The Usefulness of Brief Family Health Conversations Offered to Families Following the Diagnosis of Breast Cancer.. Journal of Family Nursing, 26(4), Article ID 1074840720966759.
Öppna denna publikation i ny flik eller fönster >>The Usefulness of Brief Family Health Conversations Offered to Families Following the Diagnosis of Breast Cancer.
2020 (Engelska)Ingår i: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 26, nr 4, artikel-id 1074840720966759Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Currently, there are few studies which examine targeted family-focused support when a family member is diagnosed with breast cancer. Thus, the aim of this study was to explore families' experiences of participating in a family nursing intervention identified as Brief Family Health Conversations (BFamHC) following the diagnosis of breast cancer. Semi-structured family interviews were conducted with nine families (including 29 family members) 2 weeks following the family-focused intervention of three sessions of BFamHC. Thematic analysis was used to analyze the data. Families reported the BFamHC as positive and as a unique kind of family health conversation, one that afforded them the opportunity to communicate and share their experiences as a family group. A family conversation, even one as time-limited as BFamHC, offered a sense of relational sharing and togetherness, thus preventing feelings of isolation and vulnerability. Therapeutic family-focused conversations, such as BFamHC, hold promise as a useful family nursing intervention following the diagnosis of breast cancer.

Ort, förlag, år, upplaga, sidor
Sage Publications, 2020
Nyckelord
Family Health Conversations, breast cancer, family nursing intervention, qualitative research
Nationell ämneskategori
Omvårdnad
Identifikatorer
urn:nbn:se:mau:diva-27160 (URN)10.1177/1074840720966759 (DOI)000586092600001 ()33111591 (PubMedID)2-s2.0-85094652831 (Scopus ID)
Tillgänglig från: 2020-11-03 Skapad: 2020-11-03 Senast uppdaterad: 2024-01-11Bibliografiskt granskad
Nilsson, U., Ericsson, E., Eriksson, M., Idvall, E. & Bramhagen, A.-C. (2019). Psychometric evaluation of the Post Hospitalization Behavior Questionnaire for Ambulatory Surgery and postoperative behvaior and recovery in children undergoing tonsil surgery (ed.). Journal of Perioperative Practice, 29(4), 94-101
Öppna denna publikation i ny flik eller fönster >>Psychometric evaluation of the Post Hospitalization Behavior Questionnaire for Ambulatory Surgery and postoperative behvaior and recovery in children undergoing tonsil surgery
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2019 (Engelska)Ingår i: Journal of Perioperative Practice, ISSN 1750-4589, Vol. 29, nr 4, s. 94-101Artikel i tidskrift (Refereegranskat) Published
Abstract [sv]

Studien bestod av en prospektiv jämförande tvärsnittstudie med 143 barn som genomgått tonsilloperation. Föräldrarna besvarade frågeformuläret ”the Post-Hospitalization Behavior Questionnarie for Ambulatory Syrgery (PHBQ-AS) och barnen besvarade frågeformuläret ”Postoperative Recovery in Children (PRiC). PHBQ-AS hade en positiv correlation med PRiC och med generell hälsa. På dag 10 postoperativt, rapporterade upp till 1/3 av barnen att de fortfarande hade fysiska symptom (PRiC). Inga köns-eller åldersskillnader hittades avseende frågor om beteende (PHBQ-AS). Den postoperative återhämtningen (PRiC) var lägre bland flickor som hade högre nivåer av illamående, yrsel, frusenhet och huvudvärk jämfört med pojkarna. Barn under 6 år rapporterade högre grad av yrsel och sämre sömn samt lägre generell hälsa

Abstract [en]

The study comprised a prospective, comparative, cross-sectional survey in 143 children undergoing tonsil surgery. Parents answered the Post Hospitalization Behavior Questionnaire for Ambulatory Surgery (PHBQ-AS), and children answered the questionnaire Postoperative Recovery in Children (PRiC). The PHBQ-AS had positive correlation with the PRiC and with general health. On day 10 after surgery, up to 1/3 of the children still reported physical symptoms (PRiC). No gender or age differences concerning the items of behavior (PHBQ-AS) were found. The quality of postoperative recovery (PRiC) in girls were lower, with higher levels of nausea, dizziness, coldness, and headache compared to boys. Children

Ort, förlag, år, upplaga, sidor
Sage Publications, 2019
Nyckelord
Behavior, Children, Pain, Postoperative Recovery, Tonsill surgery
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
urn:nbn:se:mau:diva-5302 (URN)10.1177/1750458918782878 (DOI)29932361 (PubMedID)2-s2.0-85063658329 (Scopus ID)25566 (Lokalt ID)25566 (Arkivnummer)25566 (OAI)
Tillgänglig från: 2020-02-28 Skapad: 2020-02-28 Senast uppdaterad: 2024-02-05Bibliografiskt granskad
Hylén, M., Alm-Roijer, C., Idvall, E. & Åkerman, E. (2019). To assess patients pain in intensive care: developing and testing the Swedish version of the Behavioural Pain Scale (ed.). Intensive & Critical Care Nursing, 52, 28-34
Öppna denna publikation i ny flik eller fönster >>To assess patients pain in intensive care: developing and testing the Swedish version of the Behavioural Pain Scale
2019 (Engelska)Ingår i: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 52, s. 28-34Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Objectives: The Behavioural Pain Scale has previously been translated into Swedish and psychometrically tested. One of the domains- 'compliance with ventilation'- did not show equally as good psychometric proprieties as the other domains, which led to the question whether a development of that domain would be beneficial. This study aimed to develop the domain of 'breathing pattern' in the Swedish version of the Behavioural Pain Scale and then test the instrument for discriminant validity, inter-rater reliability and criterion validity. Method: The domain 'breathing pattern' was developed and included when the Swedish version of the Behavioural Pain Scale was psychometrically tested in 360 paired assessments. Results: The instrument showed discriminant validity through a significant positive change on the scale before and during turning and inter-rater reliability with an absence of significant disagreement on the scale between the paired assessments. The developed domain had a better result in discriminant validity than the original domain. The instrument also showed higher sensitivity in discriminating pain compared to assessment without an instrument. Conclusion: The Swedish version of the Behavioural Pain Scale, with a developed domain for 'breathing pattern' showed to be a reliable instrument for pain assessment in the adult intensive-care patient. (C) 2019 Elsevier Ltd. All rights reserved.

Ort, förlag, år, upplaga, sidor
Elsevier, 2019
Nyckelord
Behavioural Pain Scale, Critical care, Intensive care, Pain assessment, Person-centred care
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
urn:nbn:se:mau:diva-14588 (URN)10.1016/j.iccn.2019.01.003 (DOI)000463611200006 ()30826170 (PubMedID)2-s2.0-85062105810 (Scopus ID)30048 (Lokalt ID)30048 (Arkivnummer)30048 (OAI)
Tillgänglig från: 2020-03-30 Skapad: 2020-03-30 Senast uppdaterad: 2024-02-05Bibliografiskt granskad
Vejzovic, V., Bramhagen, A.-C., Idvall, E. & Wennick, A. (2018). Swedish Children's Lived Experience of Ulcerative Colitis (ed.). Gastroenterology Nursing, 41, 333-340
Öppna denna publikation i ny flik eller fönster >>Swedish Children's Lived Experience of Ulcerative Colitis
2018 (Engelska)Ingår i: Gastroenterology Nursing, ISSN 1042-895X, E-ISSN 1538-9766, Vol. 41, s. 333-340Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Inflammatory bowel disease (IBD) is increasing in children. When this lifelong illness is diagnosed in childhood, especially during adolescence, it may have a negative impact on children's quality of life. The aim of the present study was to illuminate the meaning of children's lived experience of ulcerative colitis. Seven children aged between 10 and 18 years were recruited from University Hospital South Sweden and interviewed about the phenomenon under scrutiny. Data were analyzed by means of a phenomenological hermeneutical method. The meaning of the children's lived experience of ulcerative colitis was summed up as a main theme. A daily struggle to adapt and be perceived as normal consisted of 4 subthemes: being healthy despite the symptoms, being healthy despite being afraid, being healthy despite a sense of being different, and being healthy despite needing support. The children strove to perceive themselves as healthy, and they needed to be perceived as healthy, especially when experiencing symptoms of inflammatory bowel disease. Children with inflammatory bowel disease confront various problems, such as ambitions and goals that are hard to achieve, due to reduced abilities as a result of the illness or an insufficiently adapted environment.

Ort, förlag, år, upplaga, sidor
Lippincott Williams & Wilkins, 2018
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
urn:nbn:se:mau:diva-14621 (URN)10.1097/SGA.0000000000000295 (DOI)000442742900007 ()28759516 (PubMedID)2-s2.0-85052660494 (Scopus ID)24218 (Lokalt ID)24218 (Arkivnummer)24218 (OAI)
Tillgänglig från: 2020-03-30 Skapad: 2020-03-30 Senast uppdaterad: 2024-02-05Bibliografiskt granskad
Holst-Hansson, A., Idvall, E., Bolmsjö, I. & Wennick, A. (2018). The narrow treatment road to survival: Everyday life perspectives of women with breast cancer from Iraq and the former Yugoslavia undergoing radiation therapy in Sweden (ed.). European Journal of Cancer Care, 27(2)
Öppna denna publikation i ny flik eller fönster >>The narrow treatment road to survival: Everyday life perspectives of women with breast cancer from Iraq and the former Yugoslavia undergoing radiation therapy in Sweden
2018 (Engelska)Ingår i: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 27, nr 2Artikel i tidskrift (Refereegranskat)
Abstract [en]

This study aimed at exploring how women from Iraq and the former Yugoslavia, diagnosed with breast cancer and living in Sweden, experience their everyday life during radiation therapy. A qualitative research design was used comprising interviews with ten women, five originating from Iraq and five from the former Yugoslavia. Striving to survive, the women experienced their everyday life during radiation therapy as extremely challenging. This experience can be placed into three categories: strategies for survival, keeping up appearances and staying in control. Because of these specific challenges, immigrant women may need additional information and guidance in conjunction with the diagnosis, which may enable them to identify possible sources of support from those closest to them. Also, greater attention should focus on acknowledging the woman behind the diagnosis, regardless of her origin, to develop an individualised support programme to help her cope with everyday life during radiation therapy.

Ort, förlag, år, upplaga, sidor
John Wiley & Sons, 2018
Nyckelord
breast cancer, everyday life, immigrant, radiation therapy, women
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
urn:nbn:se:mau:diva-14625 (URN)10.1111/ecc.12825 (DOI)000428321300061 ()29345023 (PubMedID)2-s2.0-85044344117 (Scopus ID)26855 (Lokalt ID)26855 (Arkivnummer)26855 (OAI)
Tillgänglig från: 2020-03-30 Skapad: 2020-03-30 Senast uppdaterad: 2024-02-05Bibliografiskt granskad
Nässtrom, L., Luttik, M. L., Idvall, E. & Strömberg, A. (2017). Exploring partners' perspectives on participation in heart failure home care: a mixed-method design (ed.). Journal of Advanced Nursing, 73(5), 1208-1219
Öppna denna publikation i ny flik eller fönster >>Exploring partners' perspectives on participation in heart failure home care: a mixed-method design
2017 (Engelska)Ingår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 73, nr 5, s. 1208-1219Artikel i tidskrift (Refereegranskat)
Abstract [en]

Aim. To describe the partners' perspectives on participation in the care for patients with heart failure receiving home care. Background. Partners are often involved in care of patients with heart failure and have an important role in improving patients' well-being and self-care. Partners have described both negative and positive experiences of involvement, but knowledge of how partners of patients with heart failure view participation in care when the patient receives home care is lacking. Design. A convergent parallel mixed-method design was used, including data from interviews and questionnaires. Methods. A purposeful sample of 15 partners was used. Data collection lasted between February 2010 - December 2011. Interviews were analysed with content analysis and data from questionnaires (participation, caregiving, health-related quality of life, depressive symptoms) were analysed statistically. Finally, results were merged, interpreted and labelled as comparable and convergent or as being inconsistent. Results. Partners were satisfied with most aspects of participation, information and contact. Qualitative findings revealed four different aspects of participation: adapting to the caring needs and illness trajectory, coping with caregiving demands, interacting with healthcare providers and need for knowledge to comprehend the health situation. Results showed confirmatory results that were convergent and expanded knowledge that gave a broader understanding of partner participation in this context. Conclusion. The results revealed different levels of partner participation. Heart failure home care included good opportunities for both participation and contact during home visits, necessary to meet partners' ongoing need for information to comprehend the situation.

Ort, förlag, år, upplaga, sidor
Blackwell Munksgaard, 2017
Nyckelord
caregivers, family, heart failure, home care, mixed method, nursing, participation
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
urn:nbn:se:mau:diva-15209 (URN)10.1111/jan.13216 (DOI)000403110000019 ()27878851 (PubMedID)2-s2.0-85007170253 (Scopus ID)25049 (Lokalt ID)25049 (Arkivnummer)25049 (OAI)
Tillgänglig från: 2020-03-30 Skapad: 2020-03-30 Senast uppdaterad: 2024-02-05Bibliografiskt granskad
Leung, D., Carlson, E., Kwong, E. E., Idvall, E. & Kumlien, C. (2017). Exploring research cultures through internationalization at home for doctoral students in Hong Kong and Sweden (ed.). Nursing and Health Sciences, 19(4), 525-531
Öppna denna publikation i ny flik eller fönster >>Exploring research cultures through internationalization at home for doctoral students in Hong Kong and Sweden
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2017 (Engelska)Ingår i: Nursing and Health Sciences, ISSN 1441-0745, E-ISSN 1442-2018, Vol. 19, nr 4, s. 525-531Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Cultural skills are fundamental to developing global academic scholars. Internationalization at home can facilitate the acquisition of these skills without students having to go abroad. However, research on the effect of internationalization of higher education is scarce, despite apparent benefits to incorporating cultural sensitivity in research. Further, little is known about the role information and communication technology plays. In this pilot study, we describe the experience of doctoral students with an internationalization‐at‐home program, and its impact on developing an understanding about different research cultures. Eight doctoral nursing students from Sweden and Hong Kong participated in five webinars as “critical friends”. The study followed a descriptive, qualitative design. The results demonstrated that students observed cultural differences in others' research training programs. However, while cultural differences reinforced friendship among local peers, they challenged engagement with critical friends. Challenges led to the perception of one another not as critical friends but as “distant” friends. We discuss the possible reasons for these outcomes, and emphasize a need to nurture connectivity and common goals. This would prepare students to identify, translate, and recognize cultural differences to help develop knowledge of diverse research cultures.

Ort, förlag, år, upplaga, sidor
John Wiley & Sons, 2017
Nyckelord
culture, communication technology, higher education, internationalization, doctoral students, Sweden, Hong Kong
Nationell ämneskategori
Medicin och hälsovetenskap
Identifikatorer
urn:nbn:se:mau:diva-15185 (URN)10.1111/nhs.12369 (DOI)000418093100016 ()28884948 (PubMedID)2-s2.0-85030234968 (Scopus ID)23498 (Lokalt ID)23498 (Arkivnummer)23498 (OAI)
Tillgänglig från: 2020-03-30 Skapad: 2020-03-30 Senast uppdaterad: 2024-02-05Bibliografiskt granskad
Projekt
Lära i samarbete i det globala klassrummet: Peer Learning som en pedagogisk modell i sjuksköterskeprogrammet; Malmö högskola, Fakulteten för hälsa och samhälle (HS), Institutionen för vårdvetenskap (VV) (Upphörd 2017-12-31)
Organisationer
Identifikatorer
ORCID-id: ORCID iD iconorcid.org/0000-0002-9300-6422

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